Person Centre Planning: Exploring its use in practice.
Research type
Research Study
Full title
Person Centred Planning for Children, Young People and Families with life limiting of life threatening illness: A scoping exercise exploring its use in practice in two care settings.
IRAS ID
238599
Contact name
S Neilson
Contact email
Sponsor organisation
University of Birmingham
Clinicaltrials.gov Identifier
RRK6377, United Hospitals Birmingham R&D Governance Office registration request reference
Duration of Study in the UK
0 years, 11 months, 28 days
Research summary
Person Centred Planning is a flexible way of meeting the changing needs of children and young people (CYP) with life-limiting or life-threatening conditions and their families. It aims to create a picture of a CYP's life through recording unique information (such as which professionals they contact, what are their hopes and fears) in order to gain an understanding of their and their family’s values and needs and how they can best be met. It is a simple approach (we are calling this an ‘assessment’) that can result in detailed information being recorded. The information is presented in a format that is easy to read and understand, and can empower the CYP and family to be actively involved in their care planning.
This preliminary study uses survey to explore the use of a new Person Centred Planning Toolkit in practice, from the perspectives of CYP, their families and health care professionals. In addition it aims to inform the methodology of a future wider study with feedback from participating CYPs and their families on the data collection tool (questionnaire).
Following training health care professionals will discuss with the CYP and their family which assessment(s) to be completed. Staff will be asked to complete a questionnaire after their training and, along with the CYP, three months after the new care plan was implemented.
Data will be analysed to explore the training staff need to carry out Person Centred Planning, the impact it has had on the care planned and provided and the CYP and their family's views on the process and impact of their resulting care plan.
Findings will be used to inform a wider study of Person Centred Planning in different care settings.REC name
West Midlands - Solihull Research Ethics Committee
REC reference
18/WM/0207
Date of REC Opinion
6 Sep 2018
REC opinion
Further Information Favourable Opinion