Perceptions of work and support needs for people with diagnosis of EOD
Research type
Research Study
Full title
An exploratory study of perceptions of work and support needs for people with diagnosis of Early Onset Dementia (EOD).
IRAS ID
172803
Contact name
Nazia Ahmad
Contact email
Sponsor organisation
St.Georges Univeristy of London
Duration of Study in the UK
0 years, 3 months, 10 days
Research summary
Title: An exploratory study of perceptions of work and support needs for people with diagnosis of Early Onset Dementia (EOD).
EOD is a clinical condition that effects people of working age. At present it is unclear when people with EOD decide to leave work, how they come about this decision and if they access any professional / personal support in making this decision. Previous literature has demonstrated benefits of volunteering for people with EOD but there is currently little in the way of literature regarding benefits and challenges of employment.
Work is a key role in everyday life and is listed as one of the key quality requirements in the NSF for long-term condition. At present, there are many government drivers about supporting people with disability into and staying at work.This current study completed as part of a Masters of Research in Clinical Practice funded by NIHR; is an Interpretative Phenomenological Analysis based study that aims to explore shared and individual lived experiences of working age adults with a diagnosis of EOD and their support needs in relation to work.
7 - 10 patients who are known to the Dementia Research Center based at the National Hospital for Neurology and Neurosurgery, will be interviewed using a semi structured interviews. The interviews will last approximately 60-90 mins, & can take place either at the hospital site or at their own home.
These interviews will then be transcribed and themes generated. The participants will have the oppertunity to feedback on the final themes. The themes generated should assist clinicians working with EOD patients to have a better understanding of the perceptions of work for this client group, which might lead to better informed discussions with clinicians in the future. the participants can be referred to the Vocational Rehabilitation team at the NHNN for work support.
REC name
East of England - Essex Research Ethics Committee
REC reference
15/EE/0141
Date of REC Opinion
1 May 2015
REC opinion
Further Information Favourable Opinion