Perceptions of quality of care among people with Parkinson’s disease
Research type
Research Study
Full title
Study Title: ‘Perceptions of quality of care among people with Parkinson’s disease: a qualitative interview study’
IRAS ID
321784
Contact name
Kathleen Mulligan
Contact email
Sponsor organisation
City, University of London
Duration of Study in the UK
0 years, 5 months, 27 days
Research summary
Parkinson’s disease is the second most common neurodegenerative disease in the UK. With population growth and ageing, this is likely to increase by a fifth, to around 172,000 people in the UK, by 2030.
Until recently, much of the specialist health care for Parkinson’s disease in the UK has been delivered in hospital settings. Use of community services is a new and promising way of providing treatment and care to people with Parkinson’s disease. The rise in numbers of people with Parkinson’s disease will mean more patients being seen in community settings but research on community services for Parkinson’s disease is scarce.
One study which used a simulation model, predicted that the adoption of community services could lead to positive outcomes such as lower total PD treatment costs, a decrease in the workload and activity levels of clinical staff in hospitals, and reduced requirements in terms of hospital resources. However, the study also highlighted the need to understand the perspectives of people with Parkinson’s disease to further drive this development. Despite its importance, research on patient experience is fragmented. This research will examine the perceptions of quality of care among people with Parkinson’s disease.
The aim of the study is to explore the views of patients with Parkinson’s disease in the borough of Newham about the services they receive and how well current services meet their needs. The study will recruit ten people with Parkinson’s disease, who live in Newham and receive care from the community neuro services in East London Foundation Trust. Participants will take part in one semi-structured interview, which can take place in clinic, in the patient’s home or by telephone or online, depending on the patient preference. Before the study begins, ethical approval will be requested through the Health Research Authority and permission will be obtained from East London NHS Foundation Trust.REC name
Yorkshire & The Humber - Sheffield Research Ethics Committee
REC reference
23/YH/0005
Date of REC Opinion
11 Jan 2023
REC opinion
Favourable Opinion