People with Intellectual Disabilities:Becoming Less Eligible for Care?
Research type
Research Study
Full title
Becoming Less Eligible for care? Intellectual disability service in the age of austerity
IRAS ID
216910
Contact name
Rachel Forrester-Jones
Contact email
Sponsor organisation
University of Kent
Duration of Study in the UK
1 years, 5 months, 22 days
Research summary
The problem:
The Care Act 2014 produced a national minimum standard for getting care. But many people with ID are excluded from services and we are worried that more people with ID may not meet the ‘eligibility threshold’.We want to: provide evidence as to whether or not, over time, people with ID are getting less care and support and what happens to people who have lost care (including community based services, personal budgets, LA funded and/or provided care and care from the independent sector).
We will: use social care data bases to track the number of people with ID who have had care at three time periods (2006; 2011; 2016) because ‘austerity’ (when the government started cutting services) began after 2006, and the Care Act started in April 2015. We will look at Liverpool or another northern city and parts of London (as urban areas), and Hampshire and Kent (as rural areas).
We will interview individuals with ID and their carers about the quality of their lives and their experiences of ‘eligibility’ and of care. We will include people who have lost services and those who have not, to show how eligibility decisions affect identity, well-being and day-to-day living.
Who will be involved?
• 60 people with ID who have lost services
• 60 people with ID who have not lost services
Participants may be supported by their carers (paid/unpaid) to answer questions (n=up to 120 supporters).
• 20 carers for those who have lost services.Social Care Research Ethical Review will be sought.
We will produce:
• A report for the SSCR
• 3 reports in international journals
• 2 reports in professional practice journals for people who provide care
• 6 conference papers (1 international)
• A video of 3 people with ID and 3 carers telling their stories (Tizard website)REC name
Social Care REC
REC reference
17/IEC08/0009
Date of REC Opinion
4 May 2017
REC opinion
Further Information Favourable Opinion