Patient’s perception of consent in clinical trials

  • Research type

    Research Study

  • Full title

    A cross-sectional questionnaire study to understand patients' perception of informed consent in cancer clinical trials at Brighton and Sussex University Hospitals NHS Trust(BSUH).

  • IRAS ID

    182992

  • Contact name

    Katherine Sykes

  • Contact email

    katherine.sykes@bsuh.nhs.uk

  • Sponsor organisation

    Brighton and Sussex University Hospitals NHS trust

  • Clinicaltrials.gov Identifier

    20 July 2015 V1.0, Clinical Trial and Consent PIS; 20 July 2015 v 1.0, Clinical Trial and Consent Questionnaire

  • Duration of Study in the UK

    0 years, 8 months, 24 days

  • Research summary

    This study is designed to understand patients' perceptions of the informed consent process in cancer clinical trials. Following a systematic literature review and interview with two Research Nurses at BSUH, it is clear that informed consent is complex and challenging and little is understood about patients' perceptions of this process at BSUH. Patients who are currently enrolled on a cancer clinical trial will be asked to complete a questionnaire about their perception of their informed consent, and their overall satisfaction with different aspects of informed consent and their clinical trial. In doing this, we aim to understand, and hopefully improve, patients' experience of the informed consent process for patients entering cancer clinical trials at BSUH.

  • REC name

    Yorkshire & The Humber - Bradford Leeds Research Ethics Committee

  • REC reference

    15/YH/0375

  • Date of REC Opinion

    10 Aug 2015

  • REC opinion

    Favourable Opinion