Patients experience with Home parenteral therapy
Research type
Research Study
Full title
Home parenteral therapy: comparing patients and health professionals experiences
IRAS ID
245883
Contact name
Hana Morrissey
Contact email
Sponsor organisation
University of Wolverhampton
Clinicaltrials.gov Identifier
0, 0
Duration of Study in the UK
4 years, 0 months, 0 days
Research summary
Increasingly, patients are discharged with parenteral therapy to continue at home, some for short term but other may require continuing for longer period or life-long. Patients, however, report changes in physical conditions, psychological state, and social function that negatively affect their perceived quality of life. Early studies focused on the clinical outcomes and complications associated with this treatment or the patient condition but not their experience. Home parenteral therapy and quality of life have been studied in the USA, Australia, Canada, Japan and small number of European countries but not been in the UK population and health system environment. \nIn this study we will investigate the wider area of home parenteral therapy to gain in-depth understanding and knowledge to develop the home parenteral therapy in the UK. This study is designed to investigate patients’ experiences with home parenteral therapy and to identify factors that affect the quality of life in this population. The data will be collected through face-to-face interviews with health professionals and phone interviews with patients and their carers on aspects such as decision making, agreement to commence the home parenteral therapy, education provided before the commencement of therapy, the support provided during the period of the therapy and patient access to urgent care and urgent information or support. We will develop patient education sessions, services navigation pathway and network application.\nThrough understanding the role each of the health professionals (pharmacist, nurses and doctors) who are delivering this service and using the UK patient’s experience; we will develop education sessions which can be used as induction or refresher for new health professionals involved in this patient population care, aiming to improve patients experience and health outcomes. The results and products will be shared with the national and local health authorities involved in the provision of home parenteral therapy.
REC name
London - Brent Research Ethics Committee
REC reference
18/LO/0832
Date of REC Opinion
5 Jun 2018
REC opinion
Further Information Favourable Opinion