Patient-Reported Outcomes in integrated care – The ICS-PRO Study
Research type
Research Study
Full title
The use and implementation of Patient-Reported Outcome Measures (PROs) in integrated care settings – a mixed methods study
IRAS ID
334499
Contact name
Nicola Anderson
Contact email
Sponsor organisation
University of Birmingham
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
Integrated care is care that is planned and given to individuals in a way that helps them reach their health goals. It focuses on what the person needs and aims to make sure that care from different places like hospitals, community groups, and social services works well together to take care of the whole person.
Patient-Reported Outcomes (PROs) are reports directly from people about their symptoms, how diseases and treatments affect them, and how these things affect their overall well-being. In social care, PROs can help people get care that respects their choices and independence. Typically this information is gathered using specially designed questionnaires, often using an electronic devices such as a tablet or smartphone. They can also be used alongside patient-reported experience measures (PREMs), which tell us about a person's experience with care and the place where they get care.
Potentially, PROs can improve communication and continuity of care between people and care providers. They can help us see what needs are not being met and support personalised care plans. PROs use could help different organisations work together; help with planning when someone leaves the hospital, and reduce the times people need to go to the hospital by letting them get care at home. It is suggested that routine and coordinated collection and use of PROs/PREMs across health and social care organisations can support services like Hospital at Home, virtual wards, urgent community care teams and to help the management of multiple long-term conditions.
But we need to investigate if and how PROs/PREMs are currently being used and how they might help support care and what helps or hinders their successful use.
We will do this by undertaking individual or group interviews with professionals, people receiving care from integrated services and their carers. The information we gather through these discussions will shape an online survey that we will share with people who are interested and involved in providing and receiving integrated care and services.
REC name
London - Camberwell St Giles Research Ethics Committee
REC reference
24/LO/0042
Date of REC Opinion
5 Feb 2024
REC opinion
Further Information Favourable Opinion