Patient Portal for Stroke Survivors
Research type
Research Study
Full title
Feasibility Study of a Patient Portal for Stroke Survivors and nested randomised controlled trial
IRAS ID
351030
Contact name
Iain Marshall
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
1 years, 0 months, 0 days
Research summary
The South London Stroke Register (SLSR) is a prospective cohort study of stroke survivors which has been running continuously since 1995 and with >2,000 stroke survivors being currently followed up with interviews at 3 months and then annually for the first five years following their stroke. The study collects a wealth of data, including on stroke type and severity, functional recovery, mental health post-stroke, and quality of life; but until now, participants had no easy way to access this data.
This feasibility study aims to evaluate a patient portal for SLSR participants which has the primary objective to allow participants to access their own data (questionnaire/follow-up data) which they have previously provided to the study. We aim to investigate whether diverse stroke survivors can make use of the portal to access their data, and whether it is feasible to use the portal to collect further research data. Finally, we aim to investigate whether it is feasible to use the portal as a platform for conducting efficient randomised trials, using the example of supporting stroke survivors to self-manage their blood pressure (BP).REC name
North West - Greater Manchester West Research Ethics Committee
REC reference
25/NW/0145
Date of REC Opinion
14 May 2025
REC opinion
Favourable Opinion