Patient Family Centred Care (PFCC): Living Well to the Very End

• Research type

  Research Study

• Full title

  Patient Family Centred Care (PFCC): Living Well to the Very End

• IRAS ID

  219263

• Contact name

  Annette Boaz

• Contact email

  A.Boaz@sgul.kingston.ac.uk

• Sponsor organisation

  Kingston University

• Duration of Study in the UK

  1 years, 4 months, 30 days

• Research summary

  Patient and Family Centred Care (PFCC) is a 12 month teaching and learning programme for staff developed to help organisations make significant improvements in patients’ experiences by delivering high quality, more compassionate care using well-tested methods for improvement and techniques to improve both processes of care and staff–patient interactions, which together profoundly affect how patients and staff experience healthcare. Since February 2016, staff working at various sites across eight NHS Trusts in South East England have been participating in a one year PFCC programme. The goal of this programme is to see improvements in:

  • patients’ and families’ experiences of care
  • staff perspectives on the quality of care and staff experience
  • staff confidence in talking to patients and family
  • The organisations’ ability to respond to patients’ and families’ preferences about care in the final days and weeks of life

  The PFCC programme has been successfully used in other healthcare settings, however, has not been previously undertaken by staff delivering end of life care. Although each site will undertake a local evaluation of their individual PFCC programme, Kingston and St Georges University of London will undertake an evaluation of the whole programme which will provide data to demonstrate the utility of PFCC methods for improving end of life care for patients and their families.

  From the eight Trusts, four have been selected for a detailed evaluation which includes interviews with patients (jointly with relatives if requested) and staff members, unstructured observations of patient staff interactions on the wards and of key PFCC meetings and events and an analysis of project documentation. Three months after the death of the patient, a family member will be sent a questionnaire survey. The remaining four Trusts will receive a lighter evaluation which includes a focus group with key stakeholders and telephone interviews with staff and the PFCC local teams.

• REC name

  London - Surrey Borders Research Ethics Committee

• REC reference

  16/LO/2197

• Date of REC Opinion

  1 Mar 2017

• REC opinion

  Further Information Favourable Opinion