Patient experience of craniectomy and cranioplasty version 1.0

  • Research type

    Research Study

  • Full title

    Exploring patient experience of craniectomy and cranioplasty

  • IRAS ID

    239410

  • Contact name

    Marcia Castiel

  • Contact email

    marcia.castiel@ntw.nhs.uk

  • Sponsor organisation

    Northumberland Tyne and Wear NHS Foundation Trust

  • Duration of Study in the UK

    1 years, 2 months, 13 days

  • Research summary

    Craniectomy is neurosurgical procedure that involves removing a portion of the skull in order to relieve pressure on the underlying brain. This intervention occurs typically due to an acquired brain injury and individuals can wait some time before a consideration of whether a cranioplasty procedure will be carried out. A Cranioplasty is the surgical correction of cranial defects to restore the brain’s protection. While ample research exists on the practicalities, evolution of and materials used in cranioplasty (Corallo, De Cola, Buono, Marra, De Luca & colleagues, 2017; Khader & Towler, 2016; Abhay & Haines, 1997; Shah, Jung & Skirball, 2014), there is little research on the preoperative care and patient experience whilst waiting for cranioplasty surgery.

    Preoperative anxiety is reported to be experienced by neurology, reconstructive and general surgery patients, but no studies identify the specific preoperative concerns of cranioplasty surgery patients. The most comparable research is found in patients awaiting neuro- and reconstructive surgery and their anxieties may well overlap with cranioplasty patient anxieties. However, since the surgeries are different, and research limited, cranioplasty patients could suffer from unidentified anxieties. Identifying cranioplasty patient’s specific preoperative concerns would provide the information to effectively provide required input.

    Patients awaiting cranioplasty surgery at Walkergate Park have been observed to suffer anxiety, in some cases to clinical levels. By qualitatively investigating the causes of patient preoperative concerns this preliminary study aims to understand the experience of patients before cranioplasty in order to inform services and care.

    The study aims to recruit 8-10 participants from current patients within WGP for one 60-90 minute interview who would like to share their experience before they undergo cranioplasty. The interviews will be digitally recorded and then transcribed and analysed using thematic analysis. This will allow for themes to be identified that are common between the experiences of each participant.

  • REC name

    North East - Newcastle & North Tyneside 1 Research Ethics Committee

  • REC reference

    18/NE/0087

  • Date of REC Opinion

    9 Mar 2018

  • REC opinion

    Favourable Opinion