Patient-cEntred oesophagogAstric Cancer carE UK (PEACE Study)
Research type
Research Study
Full title
Identifying compassionate oesophagogastric cancer service care: exploring patient experiences and expectations in England, United Kingdom (PEACE Study)
IRAS ID
232377
Contact name
Joanne Cooper
Contact email
Sponsor organisation
Nottingham University Hospitals NHS Trust
Duration of Study in the UK
1 years, 6 months, 19 days
Research summary
Oesophagogastric cancer is the fifth most common malignancy and the fourth most common cause of cancer related death in the United Kingdom with its incidence rising worldwide. Oesophagogastric cancer can have a devastating impact on patient’s quality of life due to the aggressive nature of the disease and the treatments needed. Despite published health service guidelines aimed at improving care and outcomes for people with cancer, there remains a lack of scientific evidence about the most effective models of service provision for patients diagnosed with oesophagogastric cancer and their families.
The study aims to identify and explore the perceptions of patients with incurable oesophagogastric cancer about how services can be delivered to best support their needs. This includes finding out:
1. How and where care should be delivered, including best supportive and palliative care
2. What models of care should be offered, including nurse-led interventions.
3. How these models of care may influence patient defined outcomes, including perceived quality of life.A mixed methods design with a predominant qualitative focus will be used to explore perceptions and experiences of oesophagogastric cancer service provision. This will include the use of semi-structured interviews and quality of life survey completion with patients diagnosed with incurable oesophagogastric cancer.
It is anticipated that this study will contribute to the knowledge base informing future multi-disciplinary interventions for oesophagogastric cancer that place patient determined outcomes at the heart of compassionate, evidence-based service provision.
REC name
South Central - Hampshire B Research Ethics Committee
REC reference
18/SC/0122
Date of REC Opinion
6 Mar 2018
REC opinion
Favourable Opinion