Patient and Public Involvement (PPI): Feedback Cycle
Research type
Research Study
Full title
Impact of Patient and Public Involvement (PPI): Completing the Feedback Cycle
IRAS ID
203158
Contact name
Elspeth Mathie
Contact email
Duration of Study in the UK
0 years, 11 months, 31 days
Research summary
Patient and Public Involvement (PPI) in research is defined as an active partnership between the public and researchers in the research process, rather than the use of people as the ‘subjects’ of research. Service users/ PPI representatives provide comments to researchers (on research proposals or documents) and researchers are encouraged to provide feedback to PPI representatives so that the PPI representatives know if their comments are worthwhile or useful. Evidence indicates that this feedback is not routine and is very variable.
This study will i) determine the variation in types and extent of feedback given by researchers to PPI representatives in up to 6 PPI organisations in the East of England (EoE) region; ii) investigate the enablers and barriers to feedback and how such barriers could be overcome iii) develop and test a co-produced and user-generated PPI feedback tool/prompt.
Six established PPI groups across the EoE have expressed an interest to participate; up to six PPI leads, up to 227 PPI representatives and up to 316 researchers who have used the PPI groups in the past 18 months. PPI representatives will be recruited via their PPI organisation and are being asked about their experiences of PPI as members of the public not as patients.
The proposed research has 5 phases; i) an on-line survey questionnaire on the views and experiences of the PPI representatives in the groups and researchers; ii) interviews (telephone or face to face) with up to 6 PPI leads, 10 PPI representatives and 10 researchers (purposively selected to demonstrate a range of views); iii) before audit of feedback within the 6 PPI groups; iv) development of Feedback prompt/tool (based on results of survey and interviews); v) after audit of feedback. The study will last 12 months. The research idea was initiated by PPI representatives themselves.
REC name
North West - Liverpool Central Research Ethics Committee
REC reference
16/NW/0245
Date of REC Opinion
29 Mar 2016
REC opinion
Favourable Opinion