Patient and parent/carer views on the influences on physical activity

• Research type

  Research Study

• Full title

  A qualitative study investigating patient and parent/carer views on the influences on physical activity participation for children with CHD.

• IRAS ID

  337243

• Contact name

  Karen Caulfield

• Contact email

  Karen.Caulfield3@nhs.net

• Sponsor organisation

  The Newcastle upon Tyne NHS Foundation Trust

• Duration of Study in the UK

  0 years, 9 months, 28 days

• Research summary

  This study aims to address the question “what are patient, parent /carer views about physical activity for themselves or their children with congenital heart disease (CHD)?” It differs from studies done previously where the focus is on the healthcare engagement and intervention. Understanding these views will allow further work to address the challenges and barriers and look at ways we engage the parents and carers to increase physical activity in their children.
  CHD is a general term for a range of heart defects that affect the normal way the heart works.
  Participants will be asked to share thier views and experiences via an online questionnaire and / or via a semi structured conversation which will be recorded and transcribed to allow the research team to draw out common themes discussed.

  We know medical and surgical advances have turned CHD into a life-long condition rather than a life limiting condition. Life expectancy has increased in the past few decades with more than 80% of patients surviving into adulthood. With increased survival patients are open to the same non communicable diseases as the normal population such as obesity, cardiovascular disease and diabetes all of which are of great cost to patient’s quality of life, potential life expectancy and cost the healthcare system billions of pounds annually. We know that regular physical activity can reduce the risk of these diseases but that the CHD population does not participate in the same level of physical activity as the general population which means there is a greater risk of disease. This study aims to investigate why this is the case to then explore how to over come any perceived challenges and barriers to physical activity participation.
  
  

• REC name

  London - Stanmore Research Ethics Committee

• REC reference

  25/PR/0571

• Date of REC Opinion

  8 Jul 2025

• REC opinion

  Further Information Favourable Opinion