Patient and family centred care: learning with people at the frontline

  • Research type

    Research Study

  • Full title

    How to Improve Patient and Family Centred Care with Stroke, Diabetes and Hip Fracture Patients by learning Lessons from the Frontline with Staff, Patients and Relatives.

  • IRAS ID

    128477

  • Contact name

    Josephine Ocloo

  • Contact email

    j.ocloo@kingsfund.org.uk

  • Research summary

    How to improve Patient and Family Centred Care with Stroke, Diabetes and Hip Fracture Patients by learning Lessons from the Frontline with Staff, Patients and Relatives.

    The research is located within a considerable literature that shows that the way in which healthcare staff experience their job impacts on their individual performance, on patients' experience and healthcare outcomes ,and on the performance of organisations.The study aims to build on this evidence by providing multi-disciplinary clinical teams with insights into what helps or hinders the implementation of changes designed to improve patient and user experience. it will focus primarily on the micro level, what is it that happens inside the 'black box' of individual/team behaviours (multi-professional staff groupings from diverse backgrounds) connected to the improvement of patients experience. The research will also reflect on the influence of context at the meso (i.e. Directorate) and macro (i.e. organisational/Board) level. The key research question will ask what are the range of factors/processed within clinical microsystems )stroke/diabetes foot/hip fracture and at a wider context level that enable /impede staff teams to make changes/improve patient and family experiences of care?
    the research will capture data on initiatives being used to improve patient and family centred care within three care experiences ( Stroke/diabetes foot/hip fracture) at two hospital Trusts in England/Wales over one year. A realist approach will be used ,to take into account the complexity of organisations drawing upon observations/interviews of clinical teams, and identifying individual/team behaviours and attitudes (mechanisms and processes) and focus groups/interviews with patients/relatives and how these in turn result in improvement of patients and families experiences/outcomes. tis approach will be combined with co-operative inquiry (Reason 2003), which enable data to be collected collaboratively, whilst allowing staff teams [with lay involvement if possible], to learn whilst taking action at the same time.

  • REC name

    London - Bloomsbury Research Ethics Committee

  • REC reference

    13/LO/0827

  • Date of REC Opinion

    31 May 2013

  • REC opinion

    Further Information Favourable Opinion