Patient Activation in Multiple Sclerosis (version 1)
Research type
Research Study
Full title
Patient Activation in Multiple Sclerosis: the role of depression, value-based living and perceived clinician empathy.
IRAS ID
213383
Contact name
Laura Alexander
Contact email
Sponsor organisation
University of Edinburgh
Duration of Study in the UK
1 years, 5 months, 1 days
Research summary
A key treatment component of Multiple Sclerosis is self-management. Research shows that Patient Activation is important for effective self-management and better health. Patient Activation is the extent of willingness a person has to self-manage their condition and also their ability to do so. Exploring levels of Patient Activation and factors that may predict this is valuable. It can help to identify the needs of those with MS in relation to self-managing their illness and may allow preparatory or additional support to be provided.\n\nThis study is an academic, non-profit piece of work being done as part of completion of the Doctorate in Clinical Psychology at the University of Edinburgh. The design of the study means that participants will answer a set of questionnaires once only. The study will run for 10 months and recruit those attending the Anne Rowling Regenerative Neurology Clinic with a diagnosis of relapsing-remitting or progressive MS. Individuals will be informed about the study by a researcher and invited to ask questions. They will be invited to take the information sheet, consent form and questionnaires home to consider. A researcher will contact individuals by phone within one week of being given this information to find out if they wish to take part or not. If individuals would like to take part, they will be invited to complete and return the questionnaires to the clinic by free-post. The questionnaires will ask about factors thought to be predictive of Patient Activation levels and will take around 30 minutes to complete. Participant data collected will be unidentifiable and used in statistical analysis to address the research questions. Results of the study will be available by Spring/Summer 2018. All participants will be offered a summary of the findings if they are interested.
REC name
South West - Cornwall & Plymouth Research Ethics Committee
REC reference
16/SW/0330
Date of REC Opinion
6 Jan 2017
REC opinion
Further Information Favourable Opinion