Patient activation and diabetes outpatient non-attendance
Research type
Research Study
Full title
Evaluating patient activation in diabetes outpatient non-attendance amongst black and minority ethnic (BME) groups: a pilot study
IRAS ID
182855
Contact name
Desiree O Campbell-Richards
Contact email
Sponsor organisation
City University London
Duration of Study in the UK
0 years, 5 months, 31 days
Research summary
Yearly outpatient non- attendance within the diabetes service under investigation has historically been calculated between twenty-three to forty-one percent. A recent qualitative study conducted by the researcher which explored non-attendance amongst African, Bengali and Pakistani patients with diabetes, identified ownership for one’s health as a key factor in an individual’s willingness or ability to engage with diabetes services.
It is widely acknowledged that there is a direct relationship between empowerment and self-management (ownership for one’s health). The National Service Framework for Diabetes (DH 2001) lists: ‘Empowering children, young people and adults with diabetes’ as one of the core components to improving standards.
This study aims to objectively assess whether there are measurable difference in the level of patient activation between specific groups of patients with diabetes who attend or do not attend diabetes out-patient appointments.
The sample population will comprise of adults over 25 years of age diagnosed with Type 2 diabetes from African, Bengali, Pakistani, and white British ethnic groups who either regularly attend diabetes out-patient appointments or failed to attend diabetes out-patient appointments and have been referred back to their General Practitioner.
Patients who attend appointments will be identified during the course of clinic consultations by the diabetes specialist nurses and doctors whereas those who do not attend will be identified via data reports obtained from the Trust’s diabetes data management system (DIAMOND).
The thirteen-point Patient Activated Measure (Hibbard et al 2005) will be used because it has been widely validated in diverse clinical setting and ethnic groups. Empirical evidence supports its effectiveness in evaluating both empowerment and health literacy (Hibbard and Greene, 2013, Cunningham et al., 2011, Bolen et al., 2014). Its uses include but are not limited to: more effective allocation of resources, personalisation of information and goal setting for patients.REC name
West Midlands - Edgbaston Research Ethics Committee
REC reference
15/WM/0433
Date of REC Opinion
23 Nov 2015
REC opinion
Favourable Opinion