PASE ABI study v1.5

• Research type

  Research Study

• Full title

  Physical Activity, Fatigue and Self-Efficacy in Children with Acquired Brain Injury, Brain Tumours and Neurological Conditions: A Questionnaire Study

• IRAS ID

  255778

• Contact name

  Sophie Thomas

• Contact email

  sophie.thomas@nhs.net

• Sponsor organisation

  Nottingham University Hospitals

• Duration of Study in the UK

  1 years, 5 months, 1 days

• Research summary

  Acronyms:
  ABI - Acquired brain injury
  CYP - Children and young person
  PA - Physical activity

  BACKGROUND
  Growing evidence has shown that PA can be beneficial for emotional, physical and cognitive recovery. Furthermore, it has been shown that exercise can contribute to an improvement in mood and quality of life in adults with brain injury. Through our clinical observations, CYP with ABI are physically inactive relative to their peers. Many lack structured daily activity, and suffer fatigue, poor sleep, low self esteem and social isolation. Research has demonstrated that PA can have positive outcomes on health and psychological wellbeing of CYP with long-term conditions such as cerebral palsy. However, to our knowledge, there are no published studies of PA levels in CYP and other forms of brain injury or neurological conditions.

  AIM
  1) To increase the understanding of PA levels for young people with ABI, brain tumours and neurological conditions
  2) To explore if the following variables can predict PA: socioeconomic status, parental PA levels, physical illness symptoms, fatigue, disability and health related anxiety regarding exercise

  This will allow us to understand those most likely to become underactive following acquired brain injury in childhood and inform the targeting of interventions to support physical activity in this population.

  Finally, we also aim to ask participants and parents their views on CYP taking part in an intervention to increase their PA levels to inform plans for a future intervention study.

  SETTING
  The study will involve 2 NHS hospitals in England.

  METHODS
  Data will be collected by questionnaires administered to participants at the 2 hospitals in England during their outpatient clinic visits. Permission and support from the medical consultants running these clinics has already been established.

• REC name

  London - Bromley Research Ethics Committee

• REC reference

  19/LO/1324

• Date of REC Opinion

  19 Aug 2019

• REC opinion

  Further Information Favourable Opinion