PASCEP V1
Research type
Research Study
Full title
Pre-agreed supportive care escalation plan – PASCEP
IRAS ID
342153
Contact name
Elin Harding
Contact email
Sponsor organisation
Velindre University NHS Trust
Duration of Study in the UK
0 years, 6 months, 31 days
Research summary
This project seeks to gain a better understanding as to the content and format of healthcare information on an electronic platform that paramedics would find useful to their decision making when attending a patient with a life limiting illness at home.
Patients with life limiting illnesses often have complex medical conditions, take several medicines and many will have wishes and preferences that should be respected when they seek healthcare expertise. It is also the case that as patients deteriorate and become unwell, many access unscheduled care via 999 ambulance service. Often in anticipation of patient deterioration advance care plans are written, however often these plans are unavailable or lack sufficient patient specific information to help paramedics with decision making when at a patient’s home.
Within the UK and internationally there is a drive to have electronically accessible palliative and supportive care records to enable detailed patient specific information be more easily accessible to healthcare professionals to inform clinical decision making. There is currently no UK wide platform, and so we are looking at the potential use of QR code wristbands as a way of sharing relevant patient information. The QR code links to a patient specific profile which can include up to date medical information and documents such as DNACPR, as well as patient wishes and preferences for care. This project seeks to understand what information, and in what format, paramedics would find useful to their decision making when managing a patient with a life limiting illness.
Two focus groups will be held with 7-10 participants in each. These will provide a useful method of accessing multiple perspectives and experiences relating to the use of a QR code wristband system and what information they would find useful on such a system in an emergency situation to aid their care and decision making. Exploring areas of consensus or disagreement and provide an opportunity to test out ideas for potential interventions such as a QR code electronic system, including hypothetical problem solving. Vignette case examples will be used to provide realistic examples for paramedics to consider what information would be useful in these scenarios.
REC name
N/A
REC reference
N/A