Participation after paediatric acquired brain injury - version 1.0
Research type
Research Study
Full title
Participation after Paediatric Acquired Brain Injury: exploring levels of participation in children and young people after discharge from inpatient rehabilitation
IRAS ID
225987
Contact name
Rachel D Keetley
Contact email
Sponsor organisation
The University of Nottingham
Duration of Study in the UK
0 years, 4 months, 0 days
Research summary
An acquired brain injury (ABI) is a traumatic (e.g. fall, road traffic collision) or non-traumatic (e.g. infection, stroke or tumour) injury to the brain that occurs after birth. An estimated 40,000 children and young people (CYP) sustain an ABI per year in the UK which can lead to lifelong disability. Long-term problems affecting CYP’s mobility, memory, communication skills, emotions and behaviour can have significant effects on CYP’s development, quality of life, educational achievement and social participation. Research in the USA and Australia highlighted restrictions in participation at home, school and in the community that CYP with ABI experience. No published UK research was found.
Participation is defined as “involvement in a life situation” with participation restrictions being “problems an individual may experience in involvement in life situations”. Greater participation has been associated with increased quality of life, social competence and educational success of CYP with disabilities; all of which are the aims of rehabilitation interventions.
This study will explore levels of participation children and young people (CYP) with acquired brain injuries and their families experience at home, school and in the community after discharge from four UK ABI inpatient rehabilitation centres.
Data will be collected using an online survey incorporating demographic information and parent/carer-reported and optional youth-reported (11-18 years) standardised questionnaires as used in the American and Australian studies. Relationships between participation levels and influential factors will be explored and common themes will be identified.
The study findings may provide improved understanding of issues UK CYP with ABI face after discharge from inpatient rehabilitation, and inform clinical decision making, service developments and further research into interventions to support this complex population as they continue to recover and seek to fully participate in life.REC name
West Midlands - Black Country Research Ethics Committee
REC reference
17/WM/0163
Date of REC Opinion
10 May 2017
REC opinion
Further Information Favourable Opinion