Participant Opinions of Psychosis Subgroups (POPS)
Research type
Research Study
Full title
Participant Opinions of Psychosis Subgroups (POPS): Qualitative Study with Experts by Experience
IRAS ID
200607
Contact name
Elizabeth Graves
Contact email
Sponsor organisation
University of Southampton
Duration of Study in the UK
0 years, 9 months, 28 days
Research summary
The main question to be addressed is whether Kingdon and Turkington’s model of psychosis sub-groups are acceptable and useful terms as judged by people with an experience of a diagnosis schizophrenia, schizoaffective disorder or other disorder where psychosis is a primary feature. We are calling this group of people ‘experts by experience’.
The term schizophrenia has been around for over 100 years, yet there continues to be great difficulties surrounding its use in classification and as a label. It has been argued that the term schizophrenia is semantically inexact leading to the name being “essentially meaningless”. In addition, the diagnosis includes a wide ranging, heterogeneous clinical presentation and from a societal point of view, schizophrenia has become highly stigmatised. Kingdon and Turkington 1put forward a new proposal for sub-groups which arose from clinical observation; these are being described as traumatic, drug related, anxiety and sensitivity. These sub-groups are based on a biopsychosocial, vulnerability stress model of people’s experiences, are formulation informed and derived from a CBT based understanding of schizophrenia. These sub-groups may overcome some of the difficulties experienced in other classifications but more investigation is needed.
This study aims to answer:
• whether the psychosis subgroups will provide experts by experience with a valid alternative to current diagnostic classification
• whether the psychosis subgroups will be a useful alternative to current diagnostic classification for experts by experience
By using a one off face to face interview with experts by experience who are currently accessing either NHS services (Community mental health teams or GP care).REC name
South Central - Oxford A Research Ethics Committee
REC reference
16/SC/0287
Date of REC Opinion
9 Jun 2016
REC opinion
Favourable Opinion