Parkinson MR Imaging Repository: Part 2 - Database
Research type
Research Database
IRAS ID
122912
Contact name
Dorothee Auer
Contact email
Research summary
PaMIR: Parkinson MR Imaging Repository - Part 2 - Database
REC name
East Midlands - Derby Research Ethics Committee
REC reference
17/EM/0136
Date of REC Opinion
16 May 2017
REC opinion
Favourable Opinion
Data collection arrangements
We intend to collate Magnetic Resonance Imaging (MRI) data from the PAMIR study on a dedicated server at the University of Nottingham. Magnetic Resonance Imaging data recorded as part of the PAMIR multi-centre study. This includes standard structural imaging and functional imaging such as T1, T2 and T2* weighted sequences and diffusion weighted/tensor imaging. It will also include structural and functional imaging performed as part of the research protocol which includes specific T1 and T2 weighted sequences, resting state and task induced functional MRI. Basic information such as age (year of birth), gender, scan time, ProBand ID, most affected side, number of visit, scan date, Parkinson’s subject or not will be stored. More detailed clinical data, including progression data, will be available from the Tracking Parkinson's Study and can be requested separately from within the Tracking Parkinson’s study.
All data kept in the database will be strictly anonymized. No personal data will be stored in or on any freely accessible computers or sites. Participants entering into the study will be anonymized and all further data analysis will be done without any reference to personal identifiable participant data. We will be following locally approved data-handling procedures at all research sites.
Research programme
This database will mainly support imaging research in the field of Parkinson's disease. However, imaging data stored on the database may also be useful for further studies into other diseases. There is a large international bio-imaging research community which is anticipated to be able to use the data and benefit from the ability to access and analyze the large amount of data collected as part of this study. This will ensure maximum benefit for patients and healthy members of the public from collating the data as part of this research database.
Research database title
PaMIR: Parkinson MR Imaging Repository - Part 2 - Database
Establishment organisation
University of Nottingham
Establishment organisation address
University Park
Nottingham
NG7 2RD