Parents' experiences of their child receiving an anxiety diagnosis, v1

  • Research type

    Research Study

  • Full title

    Parents' experiences of their child receiving an anxiety disorder diagnosis

  • IRAS ID

    240512

  • Contact name

    Cathy Creswell

  • Contact email

    c.s.creswell@reading.ac.uk

  • Sponsor organisation

    University of Reading

  • Duration of Study in the UK

    0 years, 9 months, 24 days

  • Research summary

    Parents’ experiences of their child receiving an anxiety disorder diagnosis

    There is a lack of consensus surrounding the use of psychiatric diagnoses in clinical practice. A diagnosis can give a patient an explanation for their symptoms and pave the way to appropriate support from mental health services. However, there are also concerns that using a ‘label’ can have negative consequences for an individual.
    Understanding individuals' and families’ experiences of receiving a diagnosis can inform clinical guidance on using diagnoses; and in the context of child diagnoses it is particularly pertinent to understand parents’ experiences. Anxiety disorders are the most common mental health disorders experienced by children, but currently we know very little about parents’ experiences of their child receiving an anxiety disorder diagnosis.
    This is a qualitative study designed to provide rich and detailed insight into parents’ views and experiences related to their child’s anxiety diagnosis. We aim to identify i) elements of the diagnostic process that are helpful/unhelpful for families, and ii) optimal ways to communicate child anxiety diagnoses with families.
    The study will recruit parents/carers of children (aged 7-12 years) who have recently received a primary anxiety disorder diagnosis. Participants will be recruited through the University of Reading Anxiety and Depression in Young People (AnDY) Research Clinic. We anticipate we will recruit 12-20 participants, and to help ensure we capture varying views and experiences in the sample, we will use a purposive sampling approach.
    Parents will take part in a topic-guided interview which will last approximately 45 minutes. Interviews will be audio-recorded and participants will be able to opt to complete the interview face-to-face at The University of Reading, or over the telephone. Interviews will address parents’ expectations and beliefs related to their child’s diagnosis, unhelpful/unhelpful elements of the diagnostic process, and improvements to communicating diagnoses with families.

  • REC name

    South Central - Hampshire B Research Ethics Committee

  • REC reference

    18/SC/0214

  • Date of REC Opinion

    17 May 2018

  • REC opinion

    Further Information Favourable Opinion