Parent’s experience of the diagnosis of CF for their new-born baby
Research type
Research Study
Full title
A qualitative study exploring parent’s experience of the diagnosis of cystic fibrosis for their new born baby.
IRAS ID
316477
Contact name
Mark Guyers
Contact email
Sponsor organisation
University of Sheffield
Duration of Study in the UK
1 years, 2 months, 31 days
Research summary
As cystic fibrosis is usually diagnosed in the first 5 days of the 6-week post-natal period there are significant changes that occur within this period. Adapting to parenthood, developing and nurturing secure attachments for the new-born and finding one’s new identity within family and community life, all occur. Having a chronically unwell new-born makes these changes highly demanding. Therefore, a qualitative project understanding parents' and caregivers' experiences of the diagnosis of cystic fibrosis is beneficial to understand how and what support may be required in future clinical practice.
The current study seeks to better understand the parental experience of having a new-born baby diagnosed with cystic fibrosis.
Following semi-structured interviews, interpretative phenomenological analysis (IPA) will be utilised to provide in-depth understanding of the lived experience of having a new born child diagnosed with cystic fibrosis.
REC name
East of England - Cambridgeshire and Hertfordshire Research Ethics Committee
REC reference
22/EE/0168
Date of REC Opinion
27 Sep 2022
REC opinion
Further Information Favourable Opinion