Parental perspectives on information provision following CDH diagnosis

• Research type

  Research Study

• Full title

  A qualitative study to explore parental perspectives of information provision following an antenatal diagnosis of congenital diaphragmatic hernia in the setting of initial diagnosis and subsequent neonatal intensive care.

• IRAS ID

  304888

• Contact name

  Lawrence Miall

• Contact email

  l.miall@nhs.net

• Sponsor organisation

  University of Leeds

• Clinicaltrials.gov Identifier

  N/A, N?a

• Duration of Study in the UK

  1 years, 0 months, 0 days

• Research summary

  Receiving an antenatal diagnosis of Congenital Diaphragmatic Hernia (CDH) often with subsequent intensive care of the baby is a distressing and traumatic life event. This study seeks to gain parent perspectives on what information is given and how it is communicated (information provision) in the setting of antenatal consultation and on the neonatal intensive care unit. Ten sets of parents will be interviewed about their experience and data thematically analysed. Data will be used to suggest improvements in information provision with a focus on understanding the decision making process.

• REC name

  HSC REC B

• REC reference

  23/NI/0002

• Date of REC Opinion

  28 Feb 2023

• REC opinion

  Further Information Favourable Opinion