Parental perspectives of physiotherapy in children with CHD

  • Research type

    Research Study

  • Full title

    To explore parental perspectives of physiotherapy in children with congenital heart disease: a qualitative study

  • IRAS ID

    335049

  • Contact name

    Stephanie Clarke

  • Contact email

    sxc402@student.bham.ac.uk

  • Sponsor organisation

    University of Birmingham

  • Clinicaltrials.gov Identifier

    n/a, n/a

  • Duration of Study in the UK

    1 years, 3 months, 30 days

  • Research summary

    Congenital heart disease is one or more problems with the heart's structure which has been present since birth. Congenital heart disease can impact children's brains, leading to difficulties in their development for example sitting, walking, running, and jumping. Research has shown physiotherapy can improve children with congenital heart disease development, although this literature is limited, and further research is needed. Little is known about how parents of children with congenital heart disease feel about their child’s development or how best they feel physiotherapy could be used to support them. In this study, we will conduct one-to-one interviews, virtually via Zoom, with parents whose children have congenital heart disease and are aged between 0-18 years and have undergone cardiac surgery within the NHS. Understanding parental perspectives of their child’s development and how best they feel it should be supported, will improve future research designs and clinical trials evaluating the impact of physiotherapeutic interventions and services in children with congenital heart disease.

  • REC name

    North East - Newcastle & North Tyneside 2 Research Ethics Committee

  • REC reference

    24/NE/0115

  • Date of REC Opinion

    25 Jun 2024

  • REC opinion

    Further Information Favourable Opinion