Parent and patient perspectives of fatal and near fatal asthma

  • Research type

    Research Study

  • Full title

    Parent and patient perspectives of fatal and near fatal asthma, a qualitative study

  • IRAS ID

    237440

  • Contact name

    Ann McMurray

  • Contact email

    ann.mcmurray@ed.ac.uk

  • Duration of Study in the UK

    1 years, 6 months, 16 days

  • Research summary

    There are 5.4 million people in the UK who have asthma. Even though there are inhalers and medications to treat people for it, every 10 seconds someone is finding it hard to breathe. Their breathing can become noisy or wheezy and can feel like someone is squashing their chest, - an asthma attack. Doctors and nurses have asthma guidelines which help them decide how bad an attack is depending on things like how fast you breathe, how quickly your heart beats and how wheezy you are. They then call an attack mild, moderate or severe. There is another type of attack which is so bad it can make you stop breathing or stop your heart and if it’s not treated at the right time you can die. This gets mixed up with the severe group, but it’s different and is sometimes called a near fatal asthma attack.
    Doctors and nurses have given their point of view on what happens when someone has a near fatal asthma attack or when someone dies of an asthma attack. No one has asked young adults, parents or carers for their point of view. We feel this is very important and will help give better care and help prevent serious asthma attacks and asthma deaths.
    We’ve divided this research study into 2 parts.
    We’ll ask young adults or parents of children who have had a near fatal attack to tell us their story of what happened. We want to know how they felt and how they managed the attack. What they tell us can hopefully help us help others.
    We’ll also ask parents whose child (up to age 24 years) has died because of an asthma attack to tell us their story. We’d like to know what happened and what they feel was different about this fatal attack. We also want to know about other things they feel may have had an effect on this attack, such as things that were happening at home or other health problems.

  • REC name

    West of Scotland REC 3

  • REC reference

    18/WS/0072

  • Date of REC Opinion

    22 May 2018

  • REC opinion

    Further Information Favourable Opinion