Palliative care patients' perceptions of writing for wellbeing V1
Research type
Research Study
Full title
How do words work? Palliative care patient perceptions of writing for wellbeing.
IRAS ID
334008
Contact name
Sarah Brearley
Contact email
Sponsor organisation
Lancaster University
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
1 years, 10 months, 28 days
Research summary
This research intends to explore the lived experience of those taking part in writing for wellbeing in hospices so that its effects are better understood and the intervention can be more widely and appropriately deployed. A qualitative, hermeneutic, phenomenological, longitudinal approach will be used to reveal the lived experiences of palliative care outpatients participating in short courses of writing for wellbeing in selected UK hospices.
This study will take place within hospice outpatient centres which offer facilitated group writing for wellbeing courses to adult palliative care outpatients. Participants will be purposively recruited,from those who have expressed an interest in attending writing for wellbeing groups, and longitudinal interviews will be conducted at two time points: T1, within 1-2 weeks of the first session of the course, and T2, within 5-8 weeks from the beginning of the course. T1 interviews will capture the initial impressions of writing for wellbeing from participants, and T2, developing experiences over the duration of the course. Participants will also be asked to complete reflective journals after each session to capture emergent views.
Data will be analysed immersively, in keeping with a Heideggerian hermeneutic approach of understanding arising through a cyclical revisiting and revision that will allow perceptions of lived experiences of the intervention to emerge (Smythe et al., 2008).
REC name
London - Hampstead Research Ethics Committee
REC reference
24/LO/0259
Date of REC Opinion
3 Jun 2024
REC opinion
Further Information Favourable Opinion