Pain management in Hidradenitis Suppurativa
Research type
Research Study
Full title
Pain management in Hidradenitis Suppurativa
IRAS ID
340556
Contact name
Hannah Elizabeth Wainman
Contact email
Sponsor organisation
University of Bristol, Research Governance Team, Research & Enterprise Division
Duration of Study in the UK
0 years, 6 months, 31 days
Research summary
Hidradenitis suppurativa (HS) is a chronic, painful, long-term skin condition that causes recurrent or persistent boil-like nodules and tunnels under the skin. Commonly affected sites are the skin folds such as the armpits, groin, or under the bust. It affects 1 in 100 people, although this is likely a conservative estimate as we know it takes a long time for the diagnosis to be made.
Research has shown that pain is the most troublesome symptom reported by patients with HS. It has been highlighted as a key area for future research in HS. Dermatologists need to be better at discussing pain with their patients, its impact on their daily lives and its psychological effects. There is limited research on the best ways to manage pain in HS or how the pain impacts patients.
Some research has been done on pain management in dermatology, but this tends to focus on post-surgical pain. There is little discussion of HS in those that consider chronic painful dermatological conditions.
The aim of this project is to first establish HCPs' views on prescribing analgesia in dermatology and the impact and barriers experienced by patients. This will inform a Delphi process, where people interested in managing HS pain ( patients, dermatologists, primary care HCPs and pain specialists) come together to reach a consensus on managing pain in HS. This will help inform future clinical trials into managing pain in HS.
REC name
HSC REC B
REC reference
24/NI/0122
Date of REC Opinion
16 Oct 2024
REC opinion
Further Information Favourable Opinion