Pain in advanced disease: South Asians
Research type
Research Study
Full title
Pain in advanced disease: A qualitative interview study with South Asians in Leeds and Bradford, UK
IRAS ID
258102
Contact name
Gemma Clarke
Contact email
Sponsor organisation
Head of Research Integrity and Governance at the University of Leeds
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
0 years, 6 months, 31 days
Research summary
Pain is a common problem experienced by many people, but it is experienced more often by people as they come towards the end of their life. Getting the proper treatment for pain is important for improving people’s quality of life. Palliative care services aim to help people control their pain and other symptoms, and to help them to have a good quality of life. Patterns of pain experience and treatment are affected by culture. Some studies indicate that pain may be more common in British South Asians (those from an Indian, Pakistani or Bangladeshi background living in the UK). This study investigates pain for South Asians as they come towards the end of their life. Patterns of pain experience and treatment will be compared between people using palliative care services, and people who are not using palliative care services.
Around thirty people will be interviewed for this study. The people selected will be: adults, from a South Asian background, living in Leeds or Bradford UK, have any kind of serious life-limiting disease and experiencing pain. They will be interviewed on the topics of:
(1) Experiences of pain;
(2) Pain management and control;
(3) Speaking about and expressing pain symptoms;
(4) Seeking help for pain;
(5) Strong pain management at the end of life.The interviews will take place in the person’s own home, at a hospice, or in a place of their choosing. The interviews will be audio taped, written up and analysed for common ideas and themes. The study outcomes will be passed back to doctors, nurses, other researchers and the general public. We hope that the results may help improve pain management and palliative care services for British South Asians.
REC name
North West - Greater Manchester Central Research Ethics Committee
REC reference
19/NW/0326
Date of REC Opinion
24 May 2019
REC opinion
Favourable Opinion