Paediatric Intensive Care Audit Network (PICANet)
Research type
Research Database
IRAS ID
238693
Contact name
Richard Feltbower
Contact email
Research summary
Paediatric Intensive Care Audit Network (PICANet) Database
REC name
East Midlands - Derby Research Ethics Committee
REC reference
18/EM/0267
Date of REC Opinion
18 Oct 2018
REC opinion
Favourable Opinion
Data collection arrangements
The PICANet database collects data on all children and young people accepted for referral, transported or admitted to paediatric intensive care units (PICUs) throughout the UK.
Type of data collected:
Data is collected on patient demographics; referral, transport and admission details; diagnosis; interventions received and outcomes.
Customised data collections are also carried out from time to time which collect additional clinical data items specific to an area of care or in response to local or national policy requirements.Within England, Wales and Scotland direct patient identifiers are also collected to allow identification of multiple admissions, referrals and transports for the same individual, making the dataset person and episode-based.
Within Northern Ireland data is collected in a pseudonymised format with only indirect identifiers being collected.
Data collection arrangements:
Data is collected from PICUs and Specialist Paediatric Critical Care Transport Services via a secure web based application and held securely at the University of Leeds.
Data collection started in 2002 and is ongoing.Data is used to:
- define the supply, demand and outcomes for current PIC services and the patient population using the service (service evaluation)
- measure and improve the quality of care provided to patients as part of PIC services (clinical audit)
- extend the available knowledge with a view to ultimately providing benefits to patients (research)Research programme
To support high quality research in the areas of: - paediatric intensive care - specific conditions affecting children and young people accessing paediatric intensive care services (e.g. cardiac, neurological, infection, trauma) - epidemiology of critical illness - public health - service evaluation, clinical audit or research methodology to extend the available knowledge with a view to ultimately providing benefits to patients. The project has had Research Ethics Committee (REC) approval as a Research Database since July 2005 (ref 05/MRE04/17). Under this approval, research can be carried out either by the PICANet Database Research Team or by sharing de-identified data with other researchers.
Research database title
Paediatric Intensive Care Audit Network (PICANet) Database
Establishment organisation
University of Leeds
Establishment organisation address
Leeds Institute of Cardiovascular and Metabolic Medicine (LICAMM)
Leeds
LS2 9JT