Osteonecrosis in young people living with and beyond cancer
Research type
Research Study
Full title
A qualitative study to explore the experience of osteonecrosis in teenagers and young adults living with and beyond cancer.
IRAS ID
239017
Contact name
Janelle Yorke
Contact email
Sponsor organisation
University of Manchester
Duration of Study in the UK
0 years, 5 months, 9 days
Research summary
Osteonecrosis (also known as avascular necrosis or AVN) is a condition affecting the bones, which can lead to long-term pain, disability and the need for joint replacements. Osteonecrosis can develop after treatment for some cancers, particularly treatment involving high doses of corticosteroids.
Osteonecrosis is more common in teenagers and young adults with cancer than in either adults or children, with those aged 10-20 years at the time of their cancer diagnosis at greatest risk of developing the condition. However, little is known about the impact of osteonecrosis on young people with cancer, or the support and health services that they need.
This study aims to explore the experience of osteonecrosis in young people living with and beyond cancer, through single, semi-structured interviews. The study will be based at a regional Principal Treatment Centre for Teenagers and Young Adults. Individuals aged between 16-30 years old, who have had (or are continuing to have) treatment for any type of cancer and have been diagnosed with osteonecrosis will be eligible to take part. Approximately 10 young people will be required.
The interview will last approximately one hour, and will cover topics such as the symptoms of osteonecrosis, the effect of osteonecrosis on social, emotional and physical aspects of life and what help and support participants feel they need.
It is hoped that the results of this study will guide healthcare developments and future research into effective interventions and service models to support young people with osteonecrosis.REC name
North West - Greater Manchester West Research Ethics Committee
REC reference
18/NW/0158
Date of REC Opinion
21 Mar 2018
REC opinion
Further Information Favourable Opinion