OPTIMISTIC - optimising the care of pancreatic cancer patients

• Research type

  Research Study

• Full title

  OPTIMISing the care and support for patients with inoperable pancreaTIC cancer and their families and carers

• IRAS ID

  302097

• Contact name

  Eila Watson

• Contact email

  ewatson@brookes.ac.uk

• Sponsor organisation

  Oxford Brookes University

• Duration of Study in the UK

  1 years, 1 months, 31 days

• Research summary

  Research Summary:
  This study, which is being undertaken for the submission of a PhD thesis, is designed to improve the care and support of people diagnosed with inoperable pancreatic cancer and their family carers. \n\nPancreatic cancer has poor survival rates - only 1 in 4 (25.4%) people diagnosed with pancreatic cancer in England survive their disease for one year or more (according to figures for the period 2013-2017). Given this and the inevitable distress caused by a diagnosis of pancreatic cancer, enhancing the quality of life for people through high quality care and support, is of prime importance.\n\n\nUp to 25 people with inoperable pancreatic cancer and their family carer (n=50) will be interviewed individually at approximately one month following diagnosis, and if possible at approximately three and six months post diagnosis. Each interview will last 45-60 minutes. \n\nEligible participants (those who are not suitable for surgery) will be identified through two specialist pancreatic cancer hospitals - Oxford University Hospitals and University Hospitals Birmingham. \n\nUp to 25 healthcare professionals across the two geographical areas of Oxfordshire and the West Midlands will also be interviewed (at one time point only) to gain their experiences of delivering care and support to patients with inoperable pancreatic cancer. \n\nThe interview data will be analysed - this involves a process of identifying and organising data into themes and categories.\n\nFindings from the interviews will be presented at events, involving as many people as possible who have taken part, to develop prioritised recommendations to improve patient and family carer care and support. These recommendations will then be presented at a final event attended by participants and policy makers.

  Summary of Results:
  https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fclick.pstmrk.it%2F3ts%2Fdocs.google.com%252Fdocument%252Fd%252F1IqlNKNkVXXLIFQHj5DELFFZkaZUDyFj6%252Fedit%253Fusp%253Ddrive_link%2526ouid%253D103989795866221651371%2526rtpof%253Dtrue%2526sd%253Dtrue%2FNBTI%2FI3G3AQ%2FAQ%2F4a159d70-7723-4db5-bccd-08a6d91e0a9d%2F2%2Fhv-pZNjCCu&data=05%7C02%7Coxfordb.rec%40hra.nhs.uk%7C3ad43fecee4645984da008dcc0449af0%7C8e1f0acad87d4f20939e36243d574267%7C0%7C0%7C638596648085625034%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C0%7C%7C%7C&sdata=1IIR9TaF9vd%2Fll0wPOryo%2FqSf6an7pcpOsV9fNkAEeg%3D&reserved=0

• REC name

  South Central - Oxford B Research Ethics Committee

• REC reference

  22/SC/0013

• Date of REC Opinion

  24 Feb 2022

• REC opinion

  Further Information Favourable Opinion