Optimal routine use of PROMs in paediatric ophthalmology.
Research type
Research Study
Full title
Measuring and applying patients’ perspectives: study of optimal routine use of patient-reported outcome measures (PROMs) in paediatric ophthalmology.
IRAS ID
232782
Contact name
Jugnoo S Rahi
Contact email
Sponsor organisation
Great Ormond Street Hospital NHS Foundation Trust
Duration of Study in the UK
1 years, 11 months, 1 days
Research summary
PROMs (Patient-Reported Outcome Measures) enable patients to rate the impact of their illness and treatment/care. Their routine use is advocated to ensure NHS care is effective and provides a good patient experience. However it is not known how PROMs can best be used in paediatric ophthalmology services and whether they improve clinician’s understanding of the ‘real-life’ impact of visual impairment. We propose a first stage/pilot study of these questions which will enable planning of future intervention studies of routine use of PROMs to provide ‘personalised’ care by giving children/young people a voice.\n\nDespite the fact that routine use of PROM questionnaires in paediatrics/child health is thought to benefit shared treatment decision making, service satisfaction and treatment monitoring, there is no evidence to guide optimal approaches to achieve this in paediatric ophthalmology. The specific challenges to embedding routine PROMs use in the complex, multi-disciplinary environment of paediatric ophthalmology needs to be understood along with the needs of visually impaired child respondents.\n\nOur long-term ambition is to make Paediatric Ophthalmology provision in the NHS more effective at meeting the needs of patients by embedding their perspective in decision-making. This study will inform the planning of a future intervention studies and service provision by providing proof of concept data on what is most empowering to patients. This will advance knowledge and practice in our discipline, offer a model transferable to other paediatric specialties and enhance understanding of the routine use of PROMs as a key generic intervention in childhood disability.
REC name
London - Hampstead Research Ethics Committee
REC reference
17/LO/1484
Date of REC Opinion
17 Oct 2017
REC opinion
Favourable Opinion