Operationalising anti-racism policy and practice in PEoLC
Research type
Research Study
Full title
Operationalising anti-racism policy and practice to reduce ethnic inequalities in Palliative and End-of-life care (PEoLC): a participatory approach
IRAS ID
356721
Contact name
Jamilla Hussain
Contact email
Sponsor organisation
Bradford Teaching Hospitals NHS Foundation Trust
Duration of Study in the UK
4 years, 11 months, 31 days
Research summary
The NHS is here to care for everyone. But the COVID-19 pandemic showed that people from ethnic minority backgrounds often find it harder to get good care, including at the end of life. More research is now showing that racism, both in society and in services like the NHS, affects who gets the care they need.
What’s missing?
We don’t know enough about how racism affects people at the end of life. Everyone will be affected by death, dying or grief at some point, and our background and culture play an important part in how we experience this. The number of people dying each year is growing, and so is the UK’s ethnic diversity. That’s why tackling unfairness at the end of life is now a priority for health research.
What is this study about?
This study will create useful tools to help end racism in end-of-life care, so that everyone can get the support they need. These tools include:
• A guide (called a framework) to show what fair care looks like.
• A set of actions to help services follow the guide.
• A toolkit to help staff put these actions into practice.
These will be created with people who know about end-of-life care, including carers, staff, policy makers, service providers and local community members.How will the study work?
1. We’ll look at what has already been done around the world.
2. We’ll talk to people in Bradford, a diverse area, and listen to their experiences.
3. We’ll choose one part of the guide and test it in two places.
4. We’ll make sure the way we work with communities is fair and respectful.Why this matters?
This study will help build trust and make sure end-of-life care is fairer for everyone
REC name
Yorkshire & The Humber - Bradford Leeds Research Ethics Committee
REC reference
25/YH/0148
Date of REC Opinion
30 Sep 2025
REC opinion
Further Information Favourable Opinion