Online Needs for Young People with Cancer
Research type
Research Study
Full title
Online information and support needs for young people with cancer
IRAS ID
210309
Contact name
Lorna Fern
Contact email
Sponsor organisation
University College London NHS Foundation Trust Hospitals
Duration of Study in the UK
0 years, 7 months, 31 days
Research summary
What is the problem?
Cancer patients frequently turn to online resources for information and support, 24 hour access, anonymity and increased use of smart phones are all thought to contribute to increasing use. Despite this, how far existing resources meet the information and support needs of young people with cancer have not yet been explored.What are our aims?
I) To explore the questions listed below with young people and healthcare professionals:
How much do existing online and support resources meet the needs of young people with cancer?
What is the optimal delivery of online content in terms of format and how it is presented?
What are the views of healthcare professionals caring for young people on accessing online information and support for young people with cancer?
How can Teenage Cancer Trust provide digital on line support for young people?II) Provide recommendations to Teenage Cancer Trust on how best to provide online/digital support and information for young people with cancer.
How will we do this?
This study has five phases:
I) The study will recruit 30 young people (13-24 years) with a previous cancer diagnosis within the last five years to take part in three workshops (including focus group, interactive activities) conducted away from hospital setting. We will be recruiting patients from the point of diagnosis up to five years post treatment.
II) Further consensus will be gained at the annual patient conference Find Your Sense of Tumour with around 200 young people using interactive digital technology.
III) Healthcare professionals (n=15) will take part in a telephone interview.
IV) Further online consultation will be sought with up to 100 professionals.
V) A final consensus meeting will take place between Teenage Cancer Trust Digital Team and other stakeholders including professionals and young people.REC name
London - Brent Research Ethics Committee
REC reference
16/LO/1661
Date of REC Opinion
21 Oct 2016
REC opinion
Further Information Favourable Opinion