Occupational experiences of people diagnosed with a brain tumour
Research type
Research Study
Full title
Occupational expectations, experiences and satisfaction in people diagnosed with a primary brain tumour: a qualitative study
IRAS ID
300800
Contact name
Emma Nicklin
Contact email
Sponsor organisation
University of Leeds
Duration of Study in the UK
0 years, 7 months, 31 days
Research summary
Background: The number of adults diagnosed with brain tumours is increasing, as are the survival rates. Often overlooked in brain tumour patients due to traditionally poor survival, is the effect of the disease and its treatment on occupational outcomes and work ability. Despite the paucity of studies, returning to work is an important issue as it can impact on patients' and their families’ personal well-being, financial circumstances and quality of life.
Study aim: We aim to explore the occupational expectations, experiences and satisfaction of brain tumour patients (and their caregivers) following diagnoses and treatment.
Study design: Qualitative study with in depth, semi-structured interviews.
Study sample: Participants will be recruited from both Leeds Teaching Hospitals NHS Trust and Lancashire Teaching Hospitals NHS Trust. Participants will include adult, primary brain tumour patients, in employment at time of diagnosis, and currently in follow up care; and their caregivers.
Study outcomes: The results of our study can be useful in both clinical and research contexts. More knowledge around the experiences, barriers and facilitators influencing patients’ return to work allows the planning of tailored occupational supportive services and resources. We intend that the findings of this smaller scale qualitative study will feed into plans for a larger grant application in the future.
REC name
South West - Central Bristol Research Ethics Committee
REC reference
21/SW/0113
Date of REC Opinion
21 Sep 2021
REC opinion
Further Information Favourable Opinion