NRCT Research Database v 1.0
Research type
Research Database
IRAS ID
183094
Contact name
Jane Green
Contact email
Research summary
The UK National Registry of Childhood Tumours Epidemiological Study Database
REC name
South Central - Oxford B Research Ethics Committee
REC reference
17/SC/0001
Date of REC Opinion
19 Jan 2017
REC opinion
Favourable Opinion
Data collection arrangements
The data in this research database have already been collected, and we wish to store them so that valuable information is not lost but can continue to be used for approved research projects. The database has information on childhood cancer in the UK between 1962 and 2013; this is based on data routinely collected for cancer registration, with some additional information on cancer treatment and later health of some 98,000 children with cancer. There is also information on some 67,000 children without cancer, collected so that comparisons can be made for medical research. Data includes children's names, addresses and NHS numbers, parents’ names and addresses, and details of the date and type of cancer, treatment and follow-up for later cancer or death. For analyses, identifying details are not released, and researchers receive only anonymised data. We keep the identifying details so that if necessary we can find out what has happened to the children, through their NHS records, for researchers to study later effects of having cancer in childhood. We hold the database securely at the University of Oxford and apply strict access controls. Data are only provided to reputable researchers for approved projects.
Research programme
Academic and medical researchers looking at risk factors related to childhood cancer. The database is open to applications from researchers in the UK and in other countries, and all applications are considered by the University of Oxford and by a Data Access Oversight Committee with independent members. Anonymised data only are released, under strict conditions and to reputable researchers with satisfactory arrangements for data security.
Research database title
The UK National Registry of Childhood Tumours Epidemiological Study Database
Establishment organisation
University of Oxford
Establishment organisation address
University Offices
Wellington Square
Oxford
OX1 2JD