NIHR Health Informatics Collaborative - Transplantation Theme
Research type
Research Database
IRAS ID
245097
Contact name
Paramit Chowdhury
Contact email
Research summary
NIHR Health Informatics Collaborative - Transplantation Theme
REC name
East of England - Cambridge East Research Ethics Committee
REC reference
19/EE/0325
Date of REC Opinion
2 Dec 2019
REC opinion
Favourable Opinion
Data collection arrangements
The collaboration does not involve the capture of any new data. Instead, each participating site is cataloguing routinely collected information and standardising it in such a way that it has the potential to be compared across Trusts. The data within the renal transplantation theme includes clinical, laboratory and demographic data from all patients admitted for a kidney transplant to the participating sites between from the 1st of January 2005 and onwards, for patients who were over 16 at the time of transplant.
Research programme
In 2013 the chief medical officer and the National Institute For Health Research (NIHR) tasked the five original comprehensive biomedical research centres to form a Heath Informatics Collaborative (HIC) with the specific aim to work with their partner NHS trusts to develop methods to provide greater access to NHS routinely collected patient data to improve both clinical and research outcomes. Each centre leads on a specific clinical theme, with the Biomedical Research Centre at King’s College/Guys and St Thomas’ NHS Trust (GSTT) leading the Transplantation theme which focuses on Renal Transplantation, the largest of the solid organ transplantation programmes. The purpose of the project is to make de-identified extracts from the Renal Transplantation research database available to answer research questions. Having standardised data at each site it allows it to be combined thus providing greater coverage of the population. The power of this database will arise from the coverage it will provide in terms of the number of transplants it will cover across the population. The aim of our research within the NIHR HIC Transplant team will be to characterise the kidney transplant population in the modern era of immunosuppression.
Research database title
NIHR Health Informatics Collaborative - Transplantation Theme
Establishment organisation
Guy's and St Thomas NHS Foundation Trust
Establishment organisation address
16th floor, Tower Wing Guy's Hospital
Great Maze pond
London
SE1 9RT