NIHR Health Informatics Collaborative - Hearing Health Database
Research type
Research Database
IRAS ID
289015
Contact name
Nishchay Mehta
Contact email
Research summary
NIHR Health Informatics Collaborative Hearing Health Database
REC name
South West - Central Bristol Research Ethics Committee
REC reference
21/SW/0139
Date of REC Opinion
12 Nov 2021
REC opinion
Further Information Favourable Opinion
Data collection arrangements
Data used by researchers will be de-identified – names, addresses, NHS numbers, specific dates – will be removed, unless there is explicit ethical and legal approval to do otherwise.
The NIHR HIC works with the information governance teams within each of the participating trusts to ensure that patient information is managed in accordance with NHS and Information Commissioner’s Office (ICO) guidelines.
Research programme
The aim of the Hearing theme is to make better use of patient health data captured in NHS records by collecting data in a standardised and integrated manner across UK sites and setting up a structure for sharing and analysing these data anonymously. These new assemblies of data will allow the growth of more effective management strategies for individuals with hearing loss. The Hearing theme will develop the infrastructure and governance for the management and integration of this hearing health data. This will allow for: Exploration of the effects of known and novel risk factors such as disease clustering for hearing loss. Identification of the genetic causes of hearing loss Definition of hearing loss sub-types Identification of candidates who would benefit from upcoming clinical trials Optimisation of patient benefit from individualised treatment strategies
Research database title
NIHR Health Informatics Collaborative Hearing Health Database
Establishment organisation
University College London Hospitals NHS Foundation Trust
Establishment organisation address
250 Euston Road
NW1 2PG