NI Hospice Patient Healthcare Passport Evaluation
Research type
Research Study
Full title
Evaluation of the implementation and use of the Patient Healthcare Passport in specialist palliative care context
IRAS ID
185537
Contact name
Clare White
Contact email
Sponsor organisation
Northern Ireland Hospice
Duration of Study in the UK
1 years, 2 months, 1 days
Research summary
In response to previous research and UK legislation promoting collaborative communication between patient, families and healthcare professionals (DH, 2011), the Royal College of General Practitioners (NI) developed a Patient Healthcare Passport. This patient held record (PHR) was designed for use by people with long-term conditions and palliative care needs. However, limited research evidence exists about how these records are used and experienced by palliative patients, their families and the professionals involved in their care.
This longitudinal mixed methods cohort study, has key aims to evaluate the usefulness of the Passport in the palliative care setting and to understand how patients, families and specialist palliative care professionals experience its use. A purposeful sample of adult patients in receipt of palliative care from one hospice (n=192), their next of kin and NI Hospice professional (n=55) will be recruited. Data collection will take place at three phases with these groups of participants and will be collected via questionnaire, audio-recorded individual and focus group interviews and document review of the passports. Quantitative analysis using descriptive statistics, plus qualitative thematic content analysis using a framework approach will be used.
REC name
HSC REC B
REC reference
16/NI/0009
Date of REC Opinion
22 Jan 2016
REC opinion
Further Information Favourable Opinion