MyLifeHub: Internet of Things in Ophthalmic Care

• Research type

  Research Study

• Full title

  MyLifeHub: An Interoperability Hub for Aggregating Life-logging Big Data from Heterogeneous Sensors and its applications in Ophthalmic Care

• IRAS ID

  172517

• Contact name

  Anna Jones

• Contact email

  res-admin@moorfields.nhs.uk

• Sponsor organisation

  Barts Health NHS Trust

• Duration of Study in the UK

  2 years, 0 months, 1 days

• Research summary

  The rapid advance of the Internet of Things (IoT) technology (the network of physical objects, that contain embedded technology to communicate and sense or interact with their internal states or the external environment), and big data; grants us opportunities to build Quality of Life profiles of individuals with increased reliability and validity. This is done by monitoring life-logging data captured by a variety of IoT assets (namely objects, sensors, mobile apps, web-objects, amongst others) with constant connectivity and interaction in a network.

  MyLifeHub is such an attempt with a focus on the interoperability of the IoT assets; aiming at a common, interoperable and internet-based environment for long-term lifestyle information for individuals. This system allows users to remain informed about their daily activities: diet, sleep, mood, blood pressure, pulse rate, amongst others; enhancing self-awareness in health and encouraging positive attitudes towards lifestyles.

  This study will examine a minimum of 50 participants who will be invited to take part in the main study from the Patient Public Involvement Focus Groups for either a single visit or number of visits over the course of up to 3 months. Participants who take devices away from the hospital setting for self-use will be invited back to return the devices so that the health data collated over the 3 month period can be extracted and then sent to the University of Bedfordshire and University of Lincoln for analysis.

  Lay Summary of Results:

  The results so far have tended towards significance in showing that people having both eyelids operated on simultaneously have a longer recovery period (with reduced activity) but further analysis is required as robust enough statistical significance was not achieved. The overall downtime for the patient was less than one week.
  Has the registry been updated to include summary results?: No
  If yes - please enter the URL to summary results:
  If no – why not?: N/A
  Did you follow your dissemination plan submitted in the IRAS application form (Q A51)?: Pending
  If yes, describe or provide URLs to disseminated materials:
  If pending, date when dissemination is expected: 01/12/2025
  If no, explain why you didn't follow it:
  Have participants been informed of the results of the study?: Pending
  If yes, describe and/or provide URLs to materials shared and how they were shared:
  If pending, date when feedback is expected: 01/12/2025
  If no, explain why they haven't:
  Have you enabled sharing of study data with others?: Yes
  If yes, describe or provide URLs to how it has been shared: We plan to share the findings through scientific publication. All avenues for communication with the study group and sharing of any specific information required will be available
  If no, explain why sharing hasn't been enabled:
  Have you enabled sharing of tissue samples and associated data with others?: No
  If yes, describe or provide a URL:
  If no, explain why: N/A
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• REC name

  London - Stanmore Research Ethics Committee

• REC reference

  15/LO/1348

• Date of REC Opinion

  11 Nov 2015

• REC opinion

  Further Information Favourable Opinion