MODEM carer wellbeing study
Research type
Research Study
Full title
MODEM carer wellbeing study: the wellbeing of men and women aged below and above retirement age providing unpaid dementia care
IRAS ID
195399
Contact name
Klara Lorenz
Contact email
Sponsor organisation
London School of Economics and Political Science
Duration of Study in the UK
0 years, 7 months, 30 days
Research summary
The aim of this research is to contribute to a better understanding of factors influencing the wellbeing of unpaid male and female carers of different age groups caring for a person with dementia.
The research has been designed to complement quantitative analysis on carer wellbeing measures using standardised measures of carer burden (the ZARIT Carer Burden Scale), positive and negative aspects of caring (the COPE-index) and carer health (the EuroQol EQ-5D measure). The qualitative study aims to gather in-depth knowledge on factors measured in the standardised questionnaires but also factors identified from the literature and exchange with unpaid carers as potentially influential on carer wellbeing. It further contributes to gathering insights into how men and women and people of different age groups may frame their wellbeing.
The qualitative study will be linked to the MODEM project and constitutes an important part of my PhD studies, both of which have been funded by the Economic and Social Research Council (ESRC).
The study aims to interview 30 unpaid carers for people with dementia who are also members of the MODEM cohort. At least 14 participants will be male and 14 female. In each gender group at least 6 participants will be below and at least 6 will be above retirement age. Equal numbers of men and women as well as spouses and child carers will be interviewed. Unpaid carers will be caring for people with mild, moderate and severe dementia in the community. Participants of the qualitative interviews will be interviewed about their care experience, about gender and age aspects in the provision of dementia care and about their wellbeing.
REC name
Social Care REC
REC reference
16/IEC08/0012
Date of REC Opinion
19 Apr 2016
REC opinion
Further Information Favourable Opinion