Menstrual Health in Adolescents with Down Syndrome in the UK
Research type
Research Study
Full title
Menarche and Menstrual Health in Adolescents with Down Syndrome in the UK
IRAS ID
344714
Contact name
Katie greenland
Contact email
Sponsor organisation
London School of Hygiene & Tropical Medicine
Duration of Study in the UK
1 years, 2 months, 16 days
Research summary
Available evidence indicates that people with learning difficulties face unique challenges and suffer disparities in many aspects of their menstrual health experience. This research aims to describe the menstrual health-related knowledge and experiences of adolescents with Down syndrome in the UK to inform the development of targeted, evidence-based interventions and guidance to improve menstrual health outcomes for this population. This mixed-methods study involves a national online survey targeting caregivers of adolescents aged 10-19 years with Down syndrome and follow-up interviews with adolescents aged 13-19 years and their family and professional caregivers. The research will take 12 months to complete.
REC name
London - Brighton & Sussex Research Ethics Committee
REC reference
24/LO/0493
Date of REC Opinion
2 Aug 2024
REC opinion
Further Information Favourable Opinion