Medication beliefs and adherence in paediatric sickle cell disease (1)
Research type
Research Study
Full title
Necessity-concerns beliefs and medication adherence in children with sickle cell disease
IRAS ID
199178
Contact name
Larry Goodyer
Contact email
Sponsor organisation
Sheffield Children's NHS Foundation Trust
Duration of Study in the UK
0 years, 5 months, 1 days
Research summary
Medicines for long term conditions are not always taken as prescribed. In sickle cell disease, not taking medicines can result in infections, pain and admission to hospital. The consequences are sometimes fatal
What people believe is an important factor in determining whether they decide to take their medicines or not. This study therefore aims to find out what children, young people and their parents believe about medicines for sickle cell disease.
To answer this, patients with sickle cell disease and their parents attending outpatient appointments at Sheffield Children’s Hospital will be invited to answer a questionnaire. The questionnaire, called the “Beliefs about Medicines Questionnaire”, has been used to answer this question successfully in other conditions, such as asthma and diabetes. The “Medication Adherence Report Scale” will be included in the questionnaire to find out how much of the medicine is being taken.
This study will explore the use of these questionnaires at Sheffield Children’s Hospital. After this, a larger scale study involving other hospitals may take place. We hope this information will enable support to be provided to patients and parents to help improve the benefits of medication.
REC name
London - West London & GTAC Research Ethics Committee
REC reference
16/LO/0963
Date of REC Opinion
17 Jun 2016
REC opinion
Further Information Favourable Opinion