Measuring quality of life of people with intellectual disability
Research type
Research Study
Full title
Measuring quality of life of adults with intellectual disabilities in England
IRAS ID
292987
Contact name
Vaso Totsika
Contact email
Sponsor organisation
University College London/ University College London Hospital
Duration of Study in the UK
1 years, 7 months, 1 days
Research summary
This study will assess the measurement properties of the Personal Outcome Scale (POS); a scale designed to measure Quality of Life (QoL) of adults with intellectual disability (ID). Data will be collected from adults with ID in England in order to assess validity (how well does POS measure QoL); reliability (is the measurement of QoL free from error) and responsiveness (the ability of POS to detect change in QoL over time). The study will also explore association of change in QoL with health and social care service use and cost. Participants will be drawn from people supported by the charity Mencap. This will be the first assessment of POS’ measurement properties in the UK and is the first study to examine responsiveness of POS. Findings will benefit ID service providers and researchers by contributing to the evidence base on ways to measure QoL of people with ID, and how to interpret scores.
The study is being completed as part of a PhD project, and the PhD student is co-funded by the European Social Research Committee (UBEL-DTP) and the charity Mencap.REC name
London - South East Research Ethics Committee
REC reference
21/LO/0901
Date of REC Opinion
18 Jan 2022
REC opinion
Further Information Favourable Opinion