Meaningful outcomes for young people with an ABI (V1.1)
Research type
Research Study
Full title
What are meaningful outcomes for young people with an acquired brain injury (ABI) in adolescence and young adulthood?
IRAS ID
337530
Contact name
Melissa Lee
Contact email
Sponsor organisation
University of East Anglia (UEA)
Duration of Study in the UK
1 years, 4 months, 27 days
Research summary
Having an acquired brain injury (ABI) can lead to lots of problems, with traumatic brain injury (a type of ABI) being the leading cause of death and disability in children and young adults worldwide. When receiving support in NHS services following an ABI, to track progress and outcomes, questionnaires and goals are used. Research has suggested that there are problems with using questionnaires, for example that these do not describe what the difficulties are for the person. It has also been suggested that there are problems with using goals such as knowing what a goal is, and time pressures to do them in. This research wants to ask the young person who has experienced an ABI what they feel is a meaningful outcome in their journey since the injury, without using questionnaires or setting goals. It will ask between 12-15 people who are aged between 12-25 years old and have experienced an ABI to take pictures and/or bring items relating to what has been a meaningful outcome and using these as supportive tools in communication to help them explain their views and experiences in a semi-structured interview. The interviews will then be analysed to see if people have said similar things and look for themes. The pictures/objects will also be looked at to see if there is any overlap in themes. This hopes to help services in the future working with these problems and make sure that we are not missing important things.
REC name
South Central - Oxford A Research Ethics Committee
REC reference
24/SC/0142
Date of REC Opinion
13 Jun 2024
REC opinion
Further Information Favourable Opinion