Maximising the potential for stroke data to improve care
Research type
Research Study
Full title
Maximising the potential for stroke data to improve care: a qualitative study
IRAS ID
301901
Contact name
David Wyatt
Contact email
Sponsor organisation
King's College London
Duration of Study in the UK
4 years, 11 months, 31 days
Research summary
Stroke is the fourth leading cause of death in the UK and the single largest cause of complex disability in adults. Current annual costs of £26bn nationally per year are projected to rise to £75bn within 20 years. While there have been repeated calls for better quality information to inform decision-making, particularly around the medium and long-term outcomes of stroke, the data used is piecemeal and do not describe survivors’ needs and outcomes adequately.
This study is part of a larger research programme, funded by the National Institute for Health Research, entitled Improving the lives of stroke survivors with data. This research programme aims to improve the lives of stroke survivors through innovation in the data we collect on stroke, how we analyse it and how clinicians, patients, and healthcare managers use the data to support and manage stroke care. Our findings will improve patient care by allowing effective planning of services, personalised care, and reducing inequalities in access to care and outcomes after stroke.
The present study is divided into three parts:
1. A qualitative evaluation of how patients and stakeholders are engaged with throughout the whole programme of research.
2. An interview study with South London Stroke Register (SLSR) members to understand the informal care they receive and how best this could be documented in SLSR data. The SLSR is a register recording the first stroke in patients of all ages in Lambeth and Southwark, London.
3. An interview study that looks specifically at the data needed by stroke patients, carers, clinicians, researchers, healthcare managers and policymakers to help improve stroke care.REC name
West of Scotland REC 4
REC reference
21/WS/0145
Date of REC Opinion
19 Nov 2021
REC opinion
Further Information Favourable Opinion