Managing multiple transitions: Young adults with kidney disease
Research type
Research Study
Full title
Managing multiple transitions: Support preferences of young adults with chronic kidney disease
IRAS ID
226906
Contact name
Corina Mason
Contact email
Sponsor organisation
NHS Grampian
Duration of Study in the UK
0 years, 8 months, 15 days
Research summary
Following transition from paediatric to adult health care services, within a short number of years approximately 35% of kidney transplants in young people have been rejected and the graft failure rate of those aged 17-24 is 1.8 times more than people under 17 or over 241. Young adulthood is associated with high failure rates for renal transplants, whether or not the graft was conducted during this period or earlier childhood. A total of about 180 young adults aged 17-25 are living with transplanted kidneys in Scotland. Over 300 have moderately or severely reduced renal function or end-stage failure (chronic kidney disease stages 3-5). Research indicates that poor treatment adherence is the likely predominant cause of increased graft failure in young adulthood, in terms of medication and general care (clinic appointments, lifestyle behaviours, routine blood monitoring appointments) adherence behaviours
Young adults with chronic kidney disease will be asked if they would be willing to take part in a research project exploring their experiences of managing chronic kidney disease. This will involve completing a semi-structured interview with the chief investigator for approximately one hour. Participants will be asked questions about their self-management routine and experiences of living with chronic kidney disease. They will also be asked questions relating to their views on the support received from healthcare services and the types of support they feel would be beneficial. Approximately ten to fifteen participants will be recruited over a period of nine months.
The objective of this study is to gain an understanding of what difficulties young adults experience in managing the complex health and lifestyle behaviours associated with chronic kidney disease, and explore the healthcare support preferences of these young adults.REC name
North of Scotland Research Ethics Committee 1
REC reference
17/NS/0046
Date of REC Opinion
2 May 2017
REC opinion
Favourable Opinion