Managing glaucoma when living with dementia

  • Research type

    Research Study

  • Full title

    Patients’ and Carers’ perspectives of managing glaucoma when living with dementia: A grounded theory study

  • IRAS ID

    194767

  • Contact name

    Heather Waterman

  • Contact email

    watermanh1@cardiff.ac.uk

  • Clinicaltrials.gov Identifier

    TBC, Health and Care Research Wales Clinical Research Portfolio; TBC, UKCRN Portfolio Database

  • Duration of Study in the UK

    1 years, 3 months, 31 days

  • Research summary

    In general, studies show both visual impairment and dementia increase with age (SCIE 2014) and that poor visual acuity and low cognitive performance are strongly associated (Elyashiv et al 2014). People living with dementia and sight loss report feelings of distress and confusion from the joint effect of these two conditions and health care professionals generally feel unprepared to help appropriately (Lawrence et al 2009, 2010). Guidelines for dementia practice usually neglect the possibility that some people may also have a vision impairment and work as if all people can see (Bartlett and McKeefry 2009). There is a dearth of research on how to support people who live with dementia and also have glaucoma. This study builds on our previous work on sensory loss and dementia (SCIE 2014) and on adherence to glaucoma eye drops (Waterman et al 2013, Richardson et al 2013) to investigate from the perspectives of - i) those living with glaucoma, ii) carers and iii) health care professionals - the experiences and processes of caring and treating glaucoma when the person concerned also has dementia.

  • REC name

    Wales REC 2

  • REC reference

    16/WA/0006

  • Date of REC Opinion

    2 Feb 2016

  • REC opinion

    Further Information Favourable Opinion