Maintaining hope when ageing with cystic fibrosis.
Research type
Research Study
Full title
Maintaining hope when ageing with cystic fibrosis.
IRAS ID
257144
Contact name
Steven Stirk
Contact email
Sponsor organisation
Cardiff University
Duration of Study in the UK
1 years, 4 months, 30 days
Research summary
Thanks to rapid medical advances people with cystic fibrosis (CF) are living longer than before. The oldest generation of people currently living with CF are among the first who will be expecting to consistently live to retirement age. Given how quickly medical advances have progressed for people with CF, people have had to live with ever-changing prognoses, and ever-growing predicted life expectancies. This understandably encompasses a degree of uncertainty, and individuals will have subsequently had to adjust to their new prognostic information. This has also led to lots of new possibilities for people living with CF, for example the opportunity to enhance their well-being by having a family, working outside the home and engaging with leisure opportunities. The current research aims to explore how people with cystic fibrosis have managed to adjust to their changing prognoses.
REC name
Wales REC 6
REC reference
19/WA/0185
Date of REC Opinion
25 Jun 2019
REC opinion
Favourable Opinion